Between Science and Community: development and validation of an educational booklet on early diagnosis of Autism Spectrum Disorder and molecular biomarkers
DOI:
https://doi.org/10.1590/SciELOPreprints.17033Palavras-chave:
Transtorno do Espectro Autista, microRNAs, Educação em SaúdeResumo
Autism Spectrum Disorder (ASD) is a neurodevelopmental condition with an estimated prevalence of 1.1% of the population. In Mato Grosso do Sul, Brazil, more than 29,000 cases are estimated, although many remain underreported due to diagnostic barriers. This study describes the development and validation of an educational guide that integrates scientific communication on salivary biomarkers (microRNAs) with community engagement in translational research. Validation of the educational guide involved 15 health and education professionals and 8 members, formed by caregivers, family members, and adults with ASD. The Content Validity Index (CVI) was used for this purpose. All items achieved a CVI > 0.80. This guide constitutes an important instrument for scientific communication on ASD, democratization of knowledge, and
community engagement in research.
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Copyright (c) 2026 Julia Cunha Gonzales, Marcos Fernandes Morales, Rômulo Diniz de Arruda, Willy Rilston Souza de Jesus, Alinne Pereira de Castro
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
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Os dados de pesquisa não podem ser disponibilizados publicamente
- Os dados brutos do questionário de validação não estão publicamente disponíveis para preservar o anonimato dos participantes, conforme aprovado pelo Comitê de Ética em Pesquisa da Universidade Católica Dom Bosco (CAAE: 56241522.9.0000.516).
