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Personal data usage and privacy considerations in the COVID-19 global pandemic


  • Bethania Almeida Fiocruz_Centre for Data and Knowledge Integration in Health
  • Danilo Doneda Instituto Brasiliense de Direito Público (IDP)
  • Maria Yury Ichihara Centro de Integração de Dados e Conhecimentos para Saúde (Cidacs)
  • Manoel Barral-Netto Centro de Integração de Dados e Conhecimentos para Saúde (Cidacs)
  • Gustavo Correa Matta Escola Nacional de Saúde Pública Sérgio Arouca
  • Elaine Teixeira Rabello Universidade do Estado do Rio de Janeiro - Instituto de Medicina Social
  • Fabio Castro Gouveia Casa Oswaldo Cruz
  • Mauricio Barreto Centro de Integração de Dados e Conhecimentos para Saúde (Cidacs)



Personal Data, COVID-19, Data Governance, Technology Governance, Public Health Emergency


Data has become increasingly important and valuable for both scientists and health authorities searching for answers to the COVID-19 crisis. Due to difficulties in diagnosing this infection in populations around the world, initiatives supported by digital technologies are being developed by governments and private companies to enable the tracking of the public’s symptoms, contacts and movements. Considering the current scenario, initiatives designed to support infection surveillance and monitoring are essential and necessary. Nonetheless, ethical, legal and technical questions abound regarding the amount and types of personal data being collected, processed, shared and used in the name of public health, as well as the concomitant or posterior use of this data. These challenges demonstrate the need for new models of responsible and transparent data and technology governance in efforts to control SARS-COV2, as well as in future public health emergencies.


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Health Sciences